When you’re first hit with a diagnosis of mesothelioma, it’s hard to know where to turn.you get the answers you need and connect with experts who can help during this stressful and often overwhelming time? For individuals facing the disease, along with their family and friends, finding sound information to help you be better prepared can be a daunting task.
While the Simmons Mesothelioma Foundation does not offer medical advice or counsel, through our partnerships and experience we are aligned with a number of credible resources to help you help you face the challenges ahead and find hope. And through our Miles for Meso program, we hope to give families the opportunity to organize their own fundraising and awareness efforts.
The Mesothelioma Applied Research Foundation is the nonprofit collaboration of patients and families, physicians, advocates, and researchers. It is is a resource of hope and support for patients and families, educating them on the disease, helping them to obtain the most up-to-date information on treatment options and to connect with meso treatment specialists, and providing them assistance, emotional support and community with others.
Nurse Practitioner, Mary Hesdorffer, is a mesothelioma expert and has worked with mesothelioma patients and their families for the past twelve years. Mary is available to answer your questions about mesothelioma, its symptoms and treatments; to help you find a mesothelioma specialist near you; and to access the specific treatment options that may be best for you and your particular mesothelioma diagnosis. This is a free service provided by the Mesothelioma Applied Research Foundation.
Through our philanthropic support of mesothelioma researchers and treatment specialists, the Simmons Mesothelioma Foundation is in frequent contact with leading mesothelioma medical experts throughout the United States. We encourage you to review our Mesothelioma Research Partnership section to learn more. The National Cancer Institute also can provide a list of NCI designated cancer institutes.
The Asbestos Disease Awareness Organization is an advocacy group dedicated to fully banning asbestos and building awareness about its dangers. Led by advocate Linda Reinstein, ADAO seeks to give asbestos victims a united voice to help ensure that our rights are fairly represented and protected.
If you're looking to build awareness and raise money to support research, Miles for Meso is an excellent first step for taking action in your local community. Learn more about bringing this 5K race and fun run/walk to your home town.